Benefit, Concert for a Cause, February 15th, 2014

We might get some visitors to the blog, due to the attendance of the upcoming Benefit on 2/15. If you come to support my daughter, I cannot thank you enough! If I can ever do anything in return to show the same kindness to all of the people that have come forward to help us, I will in a heartbeat.

I must say that the benefit could not have come at a better time. As you know, Olivia has just had her 4th surgery, and she will need one more to be pain free. We have tried everything possible to avoid excising the GON (Greater Occipital Nerve), but it seems that is what we are going to have to do. Her constant 24/7, Level 10 pain just will not stop and it seems this will be our only option.

I have found out that my insurance will NOT cover her next surgery. So I want to thank everyone, from the bottom of my heart, for making it possible for us to seek the relief that Olivia desperately needs.

Excising the GON has been the one that she needs the most, but we’ve just been leery to do it because she will have numbness in her head, probably forever. We are at the point where if she is left with numbness, that is ok. We can live with that, she can live with that. It’s what she wants, just so long as she’s not left with pain, or more pain. We must decide which surgeon will perform this surgery, it is key in determining her outcome. We will be busy in the next few months determining where and when to have this done, but we will need to have it done.

Thank you all for caring so much about my daughter. She is wonderful, bright, kind and caring young girl who deserves to get her life back, and I’m confident that she will. We will be able to put all of this behind us one day soon…with a little help from our friends 🙂

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5 thoughts on “Benefit, Concert for a Cause, February 15th, 2014

  1. I’m desperate to talk to someone. For the past 9 years I’ve had chronic nerve pain around my right eye. You know the deal, I’ve been around the world trying to get it fixed. A few weeks ago, I had my corrugator muscle removed over the right eye, but now my nerve pain is so much worse than it was before the surgery. Can you tell me how long it took your daughter to feel better and not have pain after her surgeries? I’m so discouraged, because I don’t know if this is normal or not. If you can give me any insight about my pain, that would be so wonderful!

  2. Hi Meredith,

    I really appreciate your blog and putting people to the surgeons performing the decompression.

    I’ve had ON since a car accident and am finally ready to take a chance on the surgery.

    Thanks,
    -Tim

  3. I have chronic migraines and saw Dr. W.G. (Jay) Austen, Jr., MD in Boston. He said I am a candidate for complete Nerve Decompression surgery but our Anthem BC/BS denied us coverage for the surgery. I have between 20-22 migraine days each month. We have done an emergency appeals and should have their decision by Tuesday April 2nd. I am praying that you find the right surgeon for your daughter, I know Dr. Austen is the right surgeon for me, we have to have $15,000.00 up front without insurance. What kind of world are we living in when insurance can refuse to cover needed surgery?? Blessings, Kasey Burt

  4. Thank you for your website; my son, 17, has been dealing with chronic pain for over 3 years and migraines for over 9 years. He underwent MVD of the right trigeminal nerve in Houston, TX and Texas Children’s Hospital; now, still in pain, we are searching for answers like your daughter. Our specialist appointment is tomorrow at the Methodist Hospital to discuss the nerve block test. If that is successful then, we may move closer to a occipital nerve decompression. I understand your pain completely. He feels robbed of his childhood- his high school career and all the things that he loved. Mitzi

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